Accéder directement au contenu Accéder directement à la navigation
Article dans une revue

Much more than a gene: hereditary breast and ovarian cancer, reproductive choices and family life

Abstract : This article presents the results of a study that investigates the way in which carriers of a mutation on the BRCA1 or the BRCA2 gene, associated with a high risk of breast and ovarian cancer, make their reproductive decisions. Using semi-structured interviews, the study explored the way in which these persons reflected on the acceptability of taking the risk of transmitting this mutation to the next generation, the arguments they used in favor or against taking that risk, and in the light of these arguments, their opinion on the acceptability of preimplantation genetic diagnosis (PGD) as a reproductive option. The findings suggest that when carriers are planning to have a(nother) child, they are mainly concerned by the risk of transmitting 'much more than a gene': essentially painful experiences not only with respect to health, such as undergoing cancer surveillance or combatting one's own illness, but also with regards to family life, such as witnessing the illness and death of a close relative, encountering difficulties in finding a partner or reconsidering one's plans to have a family. As for opinions concerning the acceptability of PGD as a reproductive option, opinions about personal recourse were varied but all expressed the understanding that PGD should be made available to those persons who consider it their best option.
Type de document :
Article dans une revue
Liste complète des métadonnées

Littérature citée [18 références]  Voir  Masquer  Télécharger

https://hal-univ-lyon3.archives-ouvertes.fr/hal-02950332
Contributeur : Catherine Dekeuwer <>
Soumis le : dimanche 11 octobre 2020 - 09:57:40
Dernière modification le : mercredi 14 octobre 2020 - 04:25:27

Fichier

dekeuwerbatemanmuchmoreauteur ...
Fichiers produits par l'(les) auteur(s)

Identifiants

Collections

Citation

Catherine Dekeuwer, Simone Bateman. Much more than a gene: hereditary breast and ovarian cancer, reproductive choices and family life. Medicine, Health Care and Philosophy, Springer Verlag, 2013, 16 (2), pp.231-244. ⟨10.1007/s11019-011-9361-9⟩. ⟨hal-02950332⟩

Partager

Métriques

Consultations de la notice

15

Téléchargements de fichiers

55